Do you feel like a child with Dandy Walker in CA and NY has the same access to treatment and coverage? I’m speaking in the insured world but I’d love everyone’s perspective on both insured and uninsured to help to educate us all and develop a guide.
The below link lists, by state, resources that may be available to you or your child. Everything from Advocacy to Early Intervention programs for whatever state you live in. If you need help finding a service, this is a great place to start! http://www.nichcy.org/Pages/StateSpecificInfo.aspx?State=AL
There are so many different services and some vary state to state, I thought we could all help each other by posting what is available out there to help families and children affected by DW. Things like Early Intervention, Social Security, Katie Beckett Waivers and anything else anyone can think of. I’ve talked to parents […]