From those diagnosed in utero to adults living with Dandy-Walker Syndrome, we want to help you along every step of your journey.
The resources below are designed to help families understand the diagnosis, connect with other Dandy-Walker families in their region or with similar complications, find resources and benefits in their locale, and much more.
In addition to our Dandy-Walker Parents Facebook group, there are several other Dandy-Walker support groups on Facebook for different age ranges, locations, and more. These are all great forums to connect with other families in your region or with your diagnosis and conditions.
Check out the list below to find others that may be useful along your journey.