One in 10,000 children is born with Dandy-Walker Malformation, a congenital brain malformation involving the cerebellum and the fluid-filled spaces around it. Dandy-Walker is often associated with other conditions such as hydrocephalus, seizures, mobility issues, developmental delays, other central nervous system disorders, and more.
The Dandy-Walker Alliance is dedicated to serving and supporting everyone affected by Dandy-Walker. Use the menu below to learn more about our work.
May is Dandy-Walker Awareness Month, and we have so many ways to get involved and raise awareness in your community!
Dandy-Walker Malformation can cause a wide range of conditions, and everyone’s experience with it is different. Check out the videos below to hear about Dandy-Walker from three different perspectives: researcher, parent, and patient.
We’re excited to release our new Dandy-Walker Alliance t-shirts!
Choose from two new designs and four different color schemes as you represent the Dandy-Walker community. Order yours now while supplies last!
Check out our recent newsletters to catch up on the latest Dandy-Walker Alliance news and updates!
The Dandy-Walker Alliance is collaborating with Bionaut Labs to educate our constituency about an investigational new treatment for obstructive hydrocephalus associated with Dandy-Walker Malformation. Bionaut Labs is looking for patients who meet the criteria and are willing to share their MRIs for the purpose of training the Bionaut devices. Click the links below to learn more and get involved!
Join our Facebook groups, sign up for our email newsletter, follow us on social media, and reach out to our staff!