Get Involved

There are many different ways people can get involved and support the Dandy-Walker Community.  Your support enables us to continue funding genetic research, spreading awareness, and connecting families worldwide with the best resources possible.

Your support comes in many different forms. Some of the most common ways people get involved are:

Host a Fundraiser

The Dandy-Walker Alliance raises money to fund neurodevelopmental genetics research led by Dr. Kimberly Aldinger at the Seattle Children’s Hospital. With your help, we can fund this research which comprehensively searches the genome for mutations associated with Dandy-Walker Syndrome.

You can support this research and help fund awareness programs and resources for families worldwide by hosting your own Dandy-Walker Alliance fundraiser! Organize an event locally – a walk/run, bake sale, car wash, restaurant fundraiser, etc. We’ll set up a personalized donation/sign up page for your event – complete with your story and photos – and supply you with t-shirts, wristbands, and promotional materials.

Email to set up a fundraiser today!

Support Us Through Amazon and Facebook


You can support the Dandy-Walker Alliance and fund research with every eligible purchase on Amazon or share a virtual fundraiser with your Facebook community.

Visit, log in to your Amazon account, select the Dandy-Walker Alliance, Inc. as your charity of choice, and start shopping. Each time you check out at, 0.5% of your purchase will go to the Dandy-Walker Alliance!

Or, you can host a Facebook fundraiser to send to your own network without leaving the comfort of your own home. Click here to visit our Dandy-Walker Alliance Facebook page and click “Raise Money” to set up your own virtual fundraiser!

Share Your Stories


We’re excited to launch our new email newsletter (sign up here!) and a Stories page on our website, highlighting Dandy-Walker journeys and accomplishments from around the world. We want to hear your stories and updates throughout the year. If you or your loved one have had a recent accomplishment – birthday, job update, first steps, etc. – and you want to be featured, let us know!

Get in touch with to have your stories included!

Donations may be mailed to:

Dandy-Walker Alliance, Inc.
10325 Kensington Pkwy
Suite 384
Kensington, Maryland 20895

or via credit card at this secure link.


Change the life of a child