As we celebrate our 20th anniversary in 2026, the Dandy-Walker Alliance is looking to expand our reach and host fundraisers and awareness events around the country. These events serve to raise awareness, unite and connect Dandy-Walker families, and raise money to support research initiatives.
You can get in on the action by hosting your own event, working with us to organize one, or even just coming out to attend an event in your area. Whether it’s a walk/run, bake sale, car wash, restaurant fundraiser, or any other kind of event, the possibilities are endless!
If you want to set up your own event, we’ll do all the behind the scenes work for you. We’ll set up a personalized donation/sign-up page for your event – complete with your story and photos – and supply you with t-shirts, wristbands, and promotional materials.
Email ted.levasseur@dandy-walker.org to learn more and get started today!
The Dandy-Walker Open Golf Tournament will take place on Monday, August 24th at
Blackledge Country Club in Hebron, CT. There are many options to join in the fun!
Play in the Tournment: Come enjoy a great day of golf, while supporting families affected by Dandy-Walker malformation. Every golfer helps make a difference! PGA professional Evan Harmeling will be joining us! Evan is a Korn Ferry Tour winner and just captured his second Massachusetts Open Championship. Register to play at 2026 Dandy-Walker Open
Sponsor the Tournament: We truly appreciate the support from the business community so far. There are still opportunities to support the Dandy-Walker Alliance and promote your business, organization, or group. For sponsorship opportunities, click on https://dandy-walker.regfox.com/2026-dandy-walker-open-sponsorship
Support a Dandy-Walker Warrior: This year, we are creating something special at the Dandy-Walker Open. Every golf hole will honor a Dandy-Walker Warrior–celbrating the strength, courage, and resilience of our amazing community. To donate on behalf of your Dandy-Walker Warrior, head on over to https://dandy-walker.givingfuel.com/dw-warrior-hole-sponsorship
Thank and support our corporate, organizational, and group sponsors: Please join us in thanking and supporting the businesses, organizations, and groups who have signed up as tournment sponsors! View the full list at https://dandy-walker.org/dwopen2026sponsors/
Dandy-Walker Alliance, Inc.
10325 Kensington Pkwy Suite 384
Kensington, Maryland 20895
1-877-Dandy-Walker (1-877-326-3992)
The Dandy-Walker Alliance, Inc. is a 501(c)(3) tax-exempt public charity registered in the State of Maryland.
