Dandy-Walker Alliance

One in 10,000 children is born with Dandy-Walker Malformation, a congenital brain malformation involving the cerebellum and the fluid-filled spaces around it. Dandy-Walker is often associated with other conditions such as hydrocephalus, seizures, mobility issues, developmental delays, other central nervous system disorders, and more. 

The Dandy-Walker Alliance is dedicated to serving and supporting everyone affected by Dandy-Walker. Use the menu below to learn more about our work. 

Dandy-Walker Open Golf Tournament

The Dandy-Walker Alliance is excited to announce the Dandy-Walker Open golf tournament will take place next May in Maryland. All proceeds from the tournament will go toward Dandy-Walker research and awareness. Check out more details and register below!

Tuesday, May 27, 2025

Compass Pointe Golf Course | Pasadena, Maryland

9 a.m. Shotgun Start Tournament

Breakfast, Lunch, and Drinks Included  |  Awards and Silent Auction to Follow

Family Perspectives

Dandy-Walker Malformation can cause a wide range of conditions, and everyone’s experience with it is different. Check out the videos below to learn about Dandy-Walker from parents’ and patients’ perspectives. 

Medical Perspectives

Learn more about Dandy-Walker from the medical professionals who treat and research it every day. 

Dandy-Walker Merchandise

We’re excited to release our new Dandy-Walker Alliance t-shirts! 

Choose from two new designs and four different color schemes as you represent the Dandy-Walker community. Order yours now while supplies last!

What's New?

Check out our recent newsletters to catch up on the latest Dandy-Walker Alliance news and updates!

Collaboration with Bionaut Labs

 

The Dandy-Walker Alliance is collaborating with Bionaut Labs to educate our constituency about an investigational new treatment for obstructive hydrocephalus associated with Dandy-Walker Malformation. Bionaut Labs is looking for patients who meet the criteria and are willing to share their MRIs for the purpose of training the Bionaut devices. Click the links below to learn more and get involved!

Stay In Touch

Join our Facebook groups, sign up for our email newsletter, follow us on social media, and reach out to our staff!