Advocacy

U.S. Congress

 United States House of Representatives passage of Dandy-Walker and hydrocephalus Bill in June 2008.
 

House Concurrent Resolution 163 passed the House on June 26, 2008 and agreed to in the Senate without amendment and by unanimous consent on September 22, 2008.

 United States House of Representatives Appropriations Chairman Dave Obey held a public hearing on Dandy-Walker Syndrome and hydrocephalus in March 2007.

 United States Congressional testimony on Dandy-Walker and hydrocephalus in March 2007.

Congressman David Obey (WI), Ryan, Andrea and Eric in March 2007.

Congressman David Obey (WI), Ryan, Andrea and Eric in March 2007.

Dandy-Walker Leadership in Washington, DC

Congressman Chris Van Hollen (MD) floor speech.

Congressman Chris Van Hollen (MD), Ryan, Andrea and Eric in July 2006

Congressman Chris Van Hollen (MD), Ryan, Andrea and Eric in July 2006.

Congresswoman Heather Wilson (NM) press release.

Congresswoman Heather Wilson (NM), Ryan and Eric in May 2007.

Congresswoman Heather Wilson (NM), Ryan and Eric in May 2007.

 

Capitol Hill Update
Below you will find a list of pictures and press releases we hope will help keep everyone up-to-date. If you have a Dandy-Walker connection captured on film or article please let us know.

Rep. Robert Aderholt (AL) statement
Gov. Ehrlich (MD), Ryan and Eric on May 28, 2006 
House Congressional Resolution 163
Dandy-Walker Dear Colleague Letter

 Maryland Senate Testimony

Maryland Senate testimony on Dandy-Walker Syndrome and hydrocephalus. (Runtime: 30 minutes)

George Pugh Testimony

Brian Blackwell Testimony

Eric Cole Testimony

Leonardtown Middle School Letter

Maryland Senate Bill 477 

 

Linda, Brian, George, Kia, Darrin and Eric after delivering testimony before the Maryland Senate on Feb. 29, 2008.

Linda, Brian, George, Kia, Darrin and Eric after delivering testimony before the Maryland Senate on Feb. 29, 2008.

 
  
Maryland House of Delegates Testimony
  
 
 
Maryland Delegate Justin Ross, Andrea and Eric on Feb. 20, 2008

Maryland Delegate Justin Ross, Andrea and Eric on Feb. 20, 2008

 

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